Tuesday, August 5, 2008

I was able to spend some time on Friday with a 4-year-old named CJ, who has a rare disease called Urea Cycle Disorder. His body isn't able to digest protein properly, so it turns to ammonia in his body. He's only allowed 7 grams of protein per day, so they have him eating special low protein foods and carefully reading the labels of anything he eats.

During the interview, he crawled onto his mom's lap for a bit, and I snapped off a couple frames before he went off to play again.



I thought this picture was nice because it shows that he's just a regular kid. His shoe is coming untied, but he doesn't care, because the spring-loaded door over that electrical outlet is really neat. I asked him what he likes to do for fun, and he said, "dig holes."

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